What The Stuttering Community Can Learn From Rare Disease Advocacy [Part 2]
Description
This episode is Part 2 of our series “What We Can Learn from the Rare Disease Community.” Last week, we heard from Bobby Glen about navigating the healthcare system as a parent of a child with HNRNPH2. Today, his wife Nicole—who is also a pediatrician—joins us to share how raising a child with a rare disease has shaped the way she practices medicine, approaches patient advocacy, and supports families navigating speech and communication challenges.
Event Alerts:
Docs on Stuttering – May 8 (Use "PROUD25" at checkout for a free ticket)
Docs on Disability – May 15, featuring Marlee Matlin’s Sundance-premiered documentary
Philly Proud Stutter Gathering – May 19
Save The Date: Proud Stutter Annual Gala in San Francisco – October 9 (listeners get 50% off tickets!)
And yes, Survivor fans—our recap will be back to cover the season finale, which airs on May 21, 2025! Go Mitch!
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![What The Stuttering Community Can Learn From Rare Disease Advocacy [Part 2] What The Stuttering Community Can Learn From Rare Disease Advocacy [Part 2]](https://media.redcircle.com/images/2025/5/2/18/3fd5b32a-1623-430b-a4d0-3b5a14f25507_140afe13-7e90-4504-b2b9-3f7920a7190d_0.jpg)










![What The Stuttering Community Can Learn From Rare Disease Advocacy [Part 1] What The Stuttering Community Can Learn From Rare Disease Advocacy [Part 1]](https://media.redcircle.com/images/2025/4/25/5/aebaedac-6ac1-49eb-a1e6-eeb60f43dd3f_0.jpg)









